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‘Only death can stop me’: terminally ill Chinese tycoon works 12 hours daily to cure ALS

Top e-commerce executive who has survived several near-death episodes, says ‘faith’ keeps him going in the ‘darkest night’

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China’s ALS-stricken e-commerce tycoon, Cai Lei, who is in the final stage of the disease, works 12 hours a day to develop life-saving drugs. Photo: Yitiao
Zoey Zhang

A former Chinese e-commerce executive in the final stages of a rare disease is still working 12-hour days, devoting what time he has left to accelerating the search for a cure.

Cai Lei, 48, a former vice-president of JD.com, one of China’s largest e-commerce companies, has spent seven years battling amyotrophic lateral sclerosis (ALS), an incurable disease that progressively attacks motor neurons.

His condition has recently deteriorated to an advanced stage. Unable to move or speak, Cai can now communicate and work only by using eye-tracking technology to type on a computer.

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His assistant told the mainland media outlet Yitiao that Cai has survived several near-death episodes, including one in which phlegm blocked his throat, leaving him unable to breathe for about a minute.

Cai Lei, above, pictured attached to medical equipment in a hospital bed. Photo: Yitiao
Cai Lei, above, pictured attached to medical equipment in a hospital bed. Photo: Yitiao

Even the smallest movements now require extraordinary support. Four carers are needed to help him rise from a chair or return to bed, while muscle atrophy causes him pain and numbness after sitting for long periods.

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